Just diagnoised with Guillian Barre Syndrome

[A Simple Pine Box]

I am going back to the
neurologist, because the last MRI they did on my brain, back a few
years ago, there were dark spots, and when I read the report it kept
mentioning "demyelination"...........


A Simple Pine Box, I'm sorry that you suffer from MS. What are you
taking/doing for it? It does affet different people in various ways, with
some becoming disabled quickly, while not affecting others as fast.

I would suggest that you do go back to the dr - at the very least you would have a name for the symptoms you are suffering. About 10 yrs ago I took the shots that were available for MS. I took Rebif for around a year (among other problems, it gave me the worst migraines I've ever had) and then I took Copaxone for 2 years (also gave me headaches among other symptoms). I have been off the drugs now and DO NOT EVER plan to take the drugs again.

It's been 23 years since I was diagnosed. It has only been in the last few years that I've been really struggling with MS. I'm using walking aids now and we bought an electric scooter last year. What an energy saver that is! I can actually go shopping with my family and keep up with them!

[packyderms_wife]

I would suggest that you do go back to the dr - at the very least you would have a name for the symptoms you are suffering. About 10 yrs ago I took the shots that were available for MS. I took Rebif for around a year (among other problems, it gave me the worst migraines I've ever had) and then I took Copaxone for 2 years (also gave me headaches among other symptoms). I have been off the drugs now and DO NOT EVER plan to take the drugs again.

It's been 23 years since I was diagnosed. It has only been in the last few years that I've been really struggling with MS. I'm using walking aids now and we bought an electric scooter last year. What an energy saver that is! I can actually go shopping with my family and keep up with them!

Have you been following Montel Williams progress with MS? He's been doing a lot of alternatives and has been seeing great results.

K-

[nikki1843]

Thank you for all the input. I checked out the links that were posted. I had already seen the last 2 but the first 2 were new to me. I have been hunting for the herbal list that was mentioned but havnt found it yet. If someone could post a link that would help.

I have never had to search for a doctor before...how would I even begin the search?? I dont know where to start.

I am really trying hard to keep positive. But it is so hard. I am used to being able to do it all...and now it is all I can do just to get up each day. i just want this to go away...but I know I am stuck with it for now...The only thing that keeps me going is knowing that others have been through it and came out of it almost normal.

[packyderms_wife]

Thank you for all the input. I checked out the links that were posted. I had already seen the last 2 but the first 2 were new to me. I have been hunting for the herbal list that was mentioned but havnt found it yet. If someone could post a link that would help.

I have never had to search for a doctor before...how would I even begin the search?? I dont know where to start.

I am really trying hard to keep positive. But it is so hard. I am used to being able to do it all...and now it is all I can do just to get up each day. i just want this to go away...but I know I am stuck with it for now...The only thing that keeps me going is knowing that others have been through it and came out of it almost normal.

http://lists.ibiblio.org/mailman/listinfo/herb

[A Simple Pine Box]

Have you been following Montel Williams progress with MS? He's been doing a lot of alternatives and has been seeing great results.

K-

Yes,I've heard him talk. It hit him hard from day 1. It was a very short time before he was in a wheelchair and not able to take care of himself. The venue he has chosen seems to work for him.